A Winter Surprise

A Winter Wonderland
A Winter Wonderland

We got our first snowfall of the season yesterday! And it snowed for 24 hours…now that’s the way to kick off winter! Some parts of the Metro got over a foot of snow. We got 10 inches in our backyard. It’s a winter wonderland. I love the first snowfall of the year – it’s so still and peaceful. The trees are heavy with the white stuff and the birds are very glad we filled up the bird feeders! (I can say all these positive things because I don’t have to drive anywhere until Thursday.) Today, the skies are bright blue and the sun is shining. That means one thing: COLD! The high today is 10 degrees with a wind chill of 0 (yes, that’s zero). Me and Jax are all snuggly and comfy inside. Poor Steve is out clearing the job site and waiting for a crane that is stuck in ice. Ugh. He is bundled up, but I’m sure he is still chilled to the bone. I’ll have some hot apple cider waiting for him when he comes home today!

Along with a foot of snow, we got another winter surprise today!

When we left the hospital a month an a half ago, the doctors told us to expect Jax to need oxygen support through the winter. They said, if we were lucky, he might be able to be off in two to three months…

We got the call first thing this morning – Jaxson is OFF OXYGEN!

Are any of you surprised that he is ahead of the game on this? We are so proud of our little “tough guy!” Two doctors reviewed the data from Thursday’s overnight study. They both agree that his levels are completely normal. Not even a blip of concern. Wow!

We have a follow up appointment with his pulmonologist on January 20. Based on what she sees during that appointment, we might even be able to cancel the overnight sleep study in the hospital (hooray!!). We will keep the oxygen supplies in our house at least for the next month in case he gets sick and needs more support. But it’s official – no more tubes! This is huge!

No more tubes!
No more tubes!
Celebrating a win with no oxygen
Celebrating a win with no oxygen
Hee Hee! I don't have any oxygen...
Hee Hee! I don’t have any oxygen…

Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

17 thoughts on “A Winter Surprise”

  1. Thanks for sharing! Andi. You, Steve, and Lil Jax look so content 🙂 Love the pics and updates. Keep up the good work and stay warm! Wishing your little family a Very Merry Christmas and Wonderful New Year!


  2. Jax, I don’t know how you do it–reaching all these milestones early and showing us you can do this!! You continue to put smiles on a lot of faces and sighs of relief to many. You are our inspiration and we all love you so very much.


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