Little Boy, Little Boy What Do You See?

Today Jax has his second appointment with his pediatric ophthalmologist. At the last appointment, we learned that Jax is near-sighted and that he has a slight astigmatism. Jax’s pupils are also slightly different in size and when Jax is tired we notice a slight “lazy” eye and a drooping eye lid on the left eye. All of these things can be side effects of the Avastin injections and laser surgery that Jax had to combat his Retinopathy of Prematurity.

Babies with severe ROP requiring treatment, like Jax, are at greater risk for strabismusglaucomacataracts and shortsightedness (myopia) later in life, so we know we’ll have (at least) yearly follow-up ophthalmologist appointments for the rest of Jax’s life.

During this appointment, we will learn if Jax needs glasses or not!

It’s a two hour appointment, so it will be a challenge since Jax doesn’t like to sit still for very long. 🙂 Thankfully, Steve is able to come with us today. He got called off of work because when it’s -30° with wind chill, the equipment doesn’t work – which is a sign that people shouldn’t work outside in this cold, either!

Wish us luck! And maybe later you’ll see some stylin’ new glasses for the dude!

Big kisses from the big kid!
Big kisses from the big kid!
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Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

9 thoughts on “Little Boy, Little Boy What Do You See?”

    1. I think children with glasses are completely adorable. Thankfully, he doesn’t need glasses yet. I can’t imagine how I would ever get a 16-month-old to keep them on his face! 🙂

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  1. Slightly random: I began my career at Genentech. I was part of the communications team and remember walking into work the day Avastin was approved. I helped write the patient stories when we began trials for Avastin’s work with eyesight. I had no idea I’d much later being a preemie mom worried about RoP. (I still wear my Avastin t-shirt the company gave out the day of FDA approval.)

    Go Jax!

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