Good News Eye Appointment

Today was a good day! But it started out very stressful.

Today, Jax was tested for Horner’s Syndrome. Horner’s Syndrome is a rare condition that occurs when there is nerve damage to the nerves in your eyes and face. Symptoms include drooping eyelid and decreased pupil size. Jax shows these symptoms. Causes include traumatic birth, trauma to the eye, or neuroblastoma, a rare type of childhood cancer. Yes, you read that right – the big C. We were scared to death!

We knew that if he did have Horner’s Syndrome, it most likely would have been caused by the Avastin injections and laser eye surgery he received to combat his ROP. But we could not get the alternative out of our minds…

The doctor used a special eye drop to test for nerve damage. If the test showed nerve damage, an MRI would have been necessary to rule out a tumor. Scary.

But – hooray! We don’t have to worry about that anymore because there was NO nerve damage!

Jax is apparently one of the few (5% of the population) who have different sized pupils – lucky kid! 🙂 The doctor is not concerned anymore and we don’t have to go back for 6 months.

Not a second goes by that we aren’t thankful for these good days! Whew.

Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

9 thoughts on “Good News Eye Appointment”

  1. Yes! There are so many tales of momentary dread and elation with our babies. One second you are on the verge of losing your mind with fear and anxiety the next moment everything is fine, no, even great! What a reflection of life. The ups and downs, the impermanence, all of it swirling around…. I am so happy for you, Jax’s eyes are just extra special too, that’s all!


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