It’s busy around these parts, gang! There are two posts for you to check out this week:
The Invisible Woman: Working with a Disabled Child
This is a brilliant post by MrBoosMum at the blog Premmeditations that discusses the challenges of working and having a child with extra needs.
In my case, I had no options – lockdown restrictions eliminated the possibility of putting Jax into daycare. There was no way we would have been able to afford skilled 1:1 care, which Jax would have needed while he was still on oxygen support. In the beginning, Jax had 4 – 6 appointments per week – taking that much time off of work would have been impossible to coordinate and manage. Steve’s job provided us with health insurance, and we absolutely needed that, so having him stop work wasn’t reasonable. I had only one option: quit my job of 13 years to become Jax’s full-time caregiver.
This post does a fantastic job of giving a glimpse into the challenges of raising kids with extra needs by linking up to many different perspectives on the subject. (Of of my posts is linked.)
Preparing for a Short-Term, Planned Hospital Stay
We were clueless when it came to preparing for Jax’s surgeries. I learned a lot during his 3 hospital stays, so I wrote up some tips that I hope can help other parents preparing for surgery. The article was published on Preemie Babies 101 yesterday.
Facebook is Not Playing Nice
Recent changes to Facebook have impacted who sees our posts. Facebook is making pages pay to boost the reach of posts. (Sometimes only 100 out of our 783 Facebook fans see our posts!) We don’t have the budget to do any Facebook advertising. So if you rely on Facebook to keep in touch with us here on the blog, please consider signing up to receive posts by email instead. That way, you won’t miss anything! It’s easy to sign up – just enter your email address in the box in the right sidebar. Here’s what it looks like:
You wouldn’t want to miss any of this adorableness, would you? 🙂
IF I didn’t get the episodes of Baby Jax and all of you, my life would not be complete. I feel as if I were there with all of you.
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LOL – awww…we would miss you, too! 🙂
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