A Big Week of Appointments: NICU Follow-Up and Neuro-Oncologist

This is a big week, gang. Jax has two huge appointments.

The NICU follow-up is tomorrow. Any baby who spends time in the Neonatal Intensive Care Unit is followed closely for any signs of delays or concerns. The follow-up appointments are done in a clinic at the hospital, not in the actual NICU. Usually, there is a 6 month, 12 month, and 2 year follow-up, depending on the hospital and the kid. I expect the appointment to go well! (Ha, ha – did I just jinx it?!) Jax will stack the blocks and tell the doctor “cank a koo” (thank you). I think we will leave with a positive report.

And then, Wednesday is the neuro-oncologist appointment. We are going to the Journey Clinic: Center for Children with Cancer. Holy shit. It’s scary just typing that! The clinic is part of Amplatz Hospital in Minneapolis and it’s a highly specialized and respected clinic for kids with brain tumors (benign or malignant). What is the doctor going to say? I have no idea! But I am very much looking forward to information.

The past two weeks have been torture for me – I know just enough to be dangerous on Google and not enough to find any peace. If we can just get a name for the tumor and some solid plans, I will feel much better.

I can’t believe my kid has a brain tumor. What the hell?

Our life feels like this playgound: a crazy mess of steps and swirls and danger and reprieve. A place of exploration and exhaustion. A place where anything can happen…


Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

9 thoughts on “A Big Week of Appointments: NICU Follow-Up and Neuro-Oncologist”

  1. As always sending our love and best thoughts to you! Hoping the NICU follow up goes slippery smooth and that’s just sets the tone for another easy appointment later!


Thanks for hanging out with us! Leave us a comment!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: