Major Rager: Just Another Reason Chronic Lung Disease Sucks

We left the doctor’s office in tears. But, at least we’re home! We were *this close* to being sent to Children’s Hospital today.

Jax caught a cold yesterday and it has already moved into his lungs. This is pretty typical for Jax. His Chronic Lung Disease gives simple colds a fun extra twist and turns them into lung infections or pneumonia very quickly.

When his neb didn’t work this morning, I knew it was time to bring him to the doctor.

Usually when we go in for breathing problems, I pack a bag prepared for a hospital stay. I’ve never had to use it. Today, I left that bag at home and it was the only time the doctor has mentioned a hospital stay. Go figure!

While at the office, he got two “suped up” nebs and a HUGE dose of oral steroids to help release the tightness in his lungs. All that and his O2 levels only went up 1 point. But that 1 point saved us from being sent immediately to the hospital.

When you think of the term “roid rager” I’m sure the image our our adorable two-year-old does not immediately come to mind. But, the medicine really effects Jax and boy can this kid rage. Hard. Throwing things. Yelling. Pounding on the wall. Screaming, crying, hitting me. Trying to hit the nurse.

I’m sure it didn’t help that on top of the medicine, we had been there for two hours, it was past lunch time, and it was nap time.

I braved the stares in the waiting room as I walked out of the office holding my tantruming boy as tight as I could so he wouldn’t wriggle out of my grasp. He’s pretty strong for a boy who can barely breathe.

We’re on the high alert. A trip to Children’s isn’t out of the question for today. But at least we’re home for now.

You know the boy isn't feeling well when he lies down  to play!
You know the boy isn’t feeling well when he lies down to play!

 

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Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

6 thoughts on “Major Rager: Just Another Reason Chronic Lung Disease Sucks”

  1. These comments are freaking me out. Luca is getting decannulated and reconstruction surgery on Thursday! We aren’t going anywhere until then. Oh Andrea, I’m sorry. This sucks. I’m glad that you weren’t admitted but how scary to be so close. I’ve only seen Luca on steroids as a baby (well I guess that’s bc he’s only almost 1 year old adjusted!) but it’s horrible. They are not their usual, happy, little selves at all. I hope that Jax heals up and swiftly recovers.

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  2. There is definitely something nasty going around. I have been sick for a week now with a cold that is only today starting to make me feel crappy instead of miserable. Poor kiddo! Steroids and nebs are so hard on the body. I’ve given nebs to lots of kids in my teacher days and they can definitely flip the switch from calm to Hulk-like insanity. Hope he feels better ASAP and you all can avoid the hospital!

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  3. Something must be in the air. X has a fever and I am guessing it is another ear infection. I hope you can stay out of the hospital.

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