Hope During a Medical Crisis (Preemie Babies 101 Post)

An article I wrote was published on a popular preemie website today. I love it when that happens!

It was a difficult article for me to write because it’s about keeping hope. And truthfully, I have been having a hard time with that lately. That damn tumor is a cloud in my sky.

Jax’s next brain MRI is scheduled for January 13 and I’m already worried about it – the anesthesia, the results, the what-ifs.

Maybe I need to take my own advice and “smile at the rising sun…” Easier said than done, I guess…

Read: Hope During a Medical Crisis on the Preemie Babies 101 website.

I’d appreciate your feedback and comments about the article! What did you think?

Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool. View all posts by Andrea M

4 thoughts on “Hope During a Medical Crisis (Preemie Babies 101 Post)”

Parker C Quinn says:

November 28, 2014 at 10:27 am

I know how hard it is to have hope when things look so grim. But I can share with you something I learned from a very special man. My brother had brain cancer. He was in his late 20’s, married with 2 small babies. The doctors gave him 6 months. He lived 3.5 years. Three years and four months of those years were the best years of his life. He NEVER showed self pity. Never wanted pity. He got up everyday, was grateful being able to get up. He greeted each day with exuberance, joy and love. He wasn’t afraid except for not being able to watch his children grow. But everyday he gave the best of himself to everyone he came into contact with. This is his legacy. No matter what the challenge, find the joy each day brings and cherish it. I pray for good news for your Jaxson.

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1. Andrea M says:
  
  November 30, 2014 at 5:59 pm
  
  Thank you for sharing your brother with me – he sounds like an amazing man. I’m glad he was able to be at peace with his cancer. My mom was the same way – she always had hope and lived life to the fullest up until the day she died. People like your brother and my mom are inspirations to many.
  
  However, just because I am struggling with staying positive does not mean that I do not appreciate what I have. Not a day goes by that I do not find joy in being Jax’s mommy. I think it’s possible to be grateful and scared at the same time. I’m glad you’re back to blogging – I like the changes you made to your blog and look forward to more of your writing! 🙂
  
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  1. Parker C Quinn says:
    
    December 1, 2014 at 3:34 am
    
    Andrea, I am sorry, I didn’t mean to imply that you don’t appreciate or enjoy Jaxson. I know how very difficult the waiting game and the ‘not knowing’ can be. It’s hard to breathe and hold your breath at the same time. You and Jaxson are in my prayers for positive outcomes.
    
    Thank you for you words of encouragement about my blog. I needed that 😉
    
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  2. Andrea M says:
    
    December 2, 2014 at 8:02 am
    
    No worries! I like your statement “It’s hard to breathe and hold your breath at the same time.” That is VERY true and I think that’s what you were getting at in your previous comment. I’m going to use that!! 🙂 Thanks for you positive words and support.
    
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