Six Days Later: Going Home

We have the greatest news, gang! Jax gets to come HOME today!

Unexpectedly, he was able to go all night without any oxygen support. His doctors were surprised, considering the amount of support he needed yesterday afternoon. He’s been a bit backwards with this hospital visit – needing more support during the day than at night, when most kids are the opposite.

We decided to observe him this morning and during nap to make sure his levels stayed in a safe range and he’s nailing it!

We just got the official discharge orders so it’s actually happening! WE ARE GOING HOME!

Thank you all so much for your love and support. Thank you especially to all of our visitors, food bearers, and gift givers. You all know who you are – it has been amazing and humbling to have so many people rally around our little family in our time of need. We are grateful.

Jax tested positive for RSV (a preemie mom’s nightmare) and rhinovirus on top of the pneumonia. It’s like a lung trifecta, except we didn’t win anything but fear and stress.

I still can’t believe that Jax is still at risk for hospitalization because of a cold. His preemie lungs are his kryptonite and now we have even more confirmation that our decision to isolate him during his first two winters was hands down the best decision for him. His lungs had a chance to grow and get stronger, so this sickness was more mild than it could have been had his lungs been weaker.

Seeing my baby boy on oxygen again was grueling. Jax worked so hard as a baby to wean off the oxygen. It was really strange to be here now, 3 years later, praying for the same thing: stay strong little warrior.

I am exhausted, both physically and emotionally. I can’t wait to see my chiropractor – my neck is a mess from sleeping on the hospital “bed.” But you know what, I’d take the uncomfortable hospital anyday – Jax is healing. He’s safe. He’s coming home.


Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

6 thoughts on “Six Days Later: Going Home”

  1. What great news!! I had just posted a prayer request on the St. Michael’s Prayer line on December 1st. Asking for a miracle healing for Jax !! Praise God he granted you this miracle.

    Give that precious Jax a big hug from Great Aunt Mary Kay !!!!

    Love & Prayers
    Mary Kay

    Liked by 1 person

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