We got the surgery preparation paperwork in the mail already. It doesn’t really matter, though, because I know the entire booklet by heart. When you’re preparing for your child’s ninth surgery, the logistical things just fall into place. We’ve been here before, we know where to park, we know where they hide the Oreos in the waiting area, we know the shortest route to the cafeteria. Knowing these details does help, somewhat.

But. It doesn’t take away the gut-wrenching loss of control I feel when I hand my child over to the surgeon. Or the fear of seeing my child go limp once the anesthesia kicks in. Or the anxiety of waiting for the results of the scans. Or the dread of having to see my child afraid of the doctors or needles. Or the pain in my heart as he works hard to heal his little body…again. None of these things gets easier…

I have a post published on The Huffington Post called Dear Mom Waiting for a Child’s Diagnosis. I would love it if you shared the post with your people – especially if you know another family who is dealing with the anxiety of surgery or diagnosis.

Read: Dear Mom Waiting for a Child’s Diagnosis

Jax will have the fourth surgery to repair the hypospadias on April 13. (This is not brain surgery.) During the time he is under anesthesia, he will also get a scan of his brain and spine to check for changes in the tumor on his thalamus and the deposits in his spine. I have three more weeks to worry. Yay. 😉 I’m getting better at managing my anxiety and depression, but the weeks leading up to scans and surgery are still very hard for me. We’d take any extra positive thoughts, if you have them.

Dear mom waiting for a diagnosis


Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

Thanks for hanging out with us! Leave us a comment!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: