Nothing Ever Goes As Planned, Sometimes That’s a Good Thing

When I carried Jax back to the operating room yesterday, he was excited! He said “Hey, Doctor! It’s really awesome in here, isn’t it?” And everybody laughed and said “Wow, you’re a brave boy!” It’s true – he is a brave boy. Much braver than his mama, that’s for sure.

We spent 10 hours at the hospital yesterday. Our anxiety about the MRI results was through the roof. We didn’t eat well and we didn’t get any exercise. We were prepared for a rough recovery because that’s how it was last time.

So, when Jax’s bright smile and jokes roused us from an exhausted slumber this morning, we were surprised. His pain is non-existent. He has had zero bladder spasms so far thanks to a new medication. (Last time the spasms were debilitating and he screamed in pain for 10 days. Really, it was heartbreaking.) This time, Jax is outside playing. Let me say that again – Jax is outside. playing. the day after surgery.

We also got a call from Jax’s oncologist late last night. Great news – the tumor is slightly smaller and the spine deposits are stable. Next MRI is in 10 months! Whooohoo!

There are a few things I have learned since my little spit-fire joined us on this planet almost four years ago:

1. Nothing ever goes as planned.
2. Sometimes, that’s a good thing.
3. Anxiety is a waste of time and energy. (But try telling that to anxiety.)
4. If you want guidance on how to act, feel, or be in a particular situation, watch a child.
5. Eventually, even the scariest and hardest things become easier.

Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool. View all posts by Andrea M