The Hospital: Our Second Home

On Thursday, I dressed up in new clothes, paid someone to do my hair, and shared the story of Jaxson’s birthday on stage in front of nearly a thousand people. I love public speaking and I definitely want to do that again.

On Friday,  Jax and I bonked heads. Hard. I saw stars. I thought the bone above my eye might be broken. I cried and Jax rubbed my back saying “I’m sorry, mommy. I didn’t mean to hurt you!” (My sweet, empathetic boy.)

On Saturday, I woke up with my very first black eye. (No broken bones, though, so there’s that.)

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On Sunday, I got to sleep in and my boys made me a

beautiful

Mother’s day card. I spent the day in my garden digging, rearranging, and planting all kinds of fun things. I played the role of “secondary parent” which felt like a real break from my daily routine. It was perfect.

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Until Jax woke up with a high fever and a terrible cough.

Over the weekend,  Jax’s asthma had been flaring up because of the change of seasons, the blooming everything, and the smoke from the Canadian forest fires. When he spiked the temperature, though, I knew there was something more going on.

I trusted my gut and went directly to Children’s Hospital where Jax was admitted and diagnosed with pneumonia.

It was ok, though because he was his usual bouncy and happy self.

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He needed a lot of oxygen support overnight, but I figured he’d bounce back to his regular ol’ antics during the day.

Unfortunately,  he is getting worse as the day goes on. He’s only been able to go one hour so far today without oxygen. Daytime oxygen is not good. He’s been in bed all morning and hasn’t eaten. He’s getting breathing treatments every two hours and they aren’t really helping much.

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My boy looks so little.

This is way too familiar. Last time this happened, he was inpatient for 6 days.

Please, Universe, don’t do that again!!

Jax’s lungs are still healing from Chronic Lung Disease of Prematurity,  he has asthma, and he has seasonal allergies, all on top of the pneumonia. It’s the perfect storm for a lengthy hospitalization, but I’m keeping hope that he turns the corner quickly.

It’s amazing how quickly life can go from extraordinary, to routine, to crisis.

Please keep him in your thoughts as he fights this illness!

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Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool.

6 thoughts on “The Hospital: Our Second Home”

  1. Dear Andrea & Steve: My heart goes out to you. I’ve put Jaxson on the St. Michael’s prayer line. Please keep me posted. Thanks: Mary Kay

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  2. Oh man! Seeing your big boy laid up in the hospital with O2 and constant neb treatments is so painful. I can only imagine what it’s like to endure this….still. Although my memories of surgeries, comas, pick lines, O2, vents, etc. feel like yesterday they are a distance from us now. My heart goes out to you, it really does. I don’t know what to say other than Jax is a warrior and you’re a dragon mother and this too shall pass.

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  3. First that’s quite a doozy of a black eye was that brewing Friday night? I didn’t see it. Second come on lungs, get better no lengthy stay.

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