Uneventful Night – Hooray

Relatively speaking, Jax had a pretty good night. He got a lot of solid sleep and didn’t need as much oxygen, so that’s great. 

I caught his cold, so I’m not feeling well, which is making the stay even more challenging for me. I fell asleep at 8:00 last night and slept for 7 hours straight! That’s more sleep than I even get at home. I feel out of the loop because I slept through all the nighttime cares, but I really needed the rest.

Jax is still on daytime oxygen but we’re going to work on weaning him today a little bit. He’s been dropping his sats so far, so we’re not making much progress. They did get us an extension for his oxygen tubing, so now he has more room to move around. The more he can move/play, the better because it helps all the junk in his lungs move around. 

Steve took the day off of work because he knew I wasn’t feeling well. It helps to have another person here, for sure! Taking time off of work is hard for both of us, since neither of us have any paid time off. But, you do what you have to do.

The daytime oxygen does not bode well for going home anytime soon. Maybe they’ll have a turkey dinner in the cafeteria on Thanksgiving… 😦 

Or, who knows! Maybe Jax will surprise us and turn the corner sooner than we think! He is good at going against the grain and doing things his own way. ❤ 

Author: Andrea M

Oh man, what an adventure! I went into labor unexpectedly when I was 23w3d pregnant. Jaxson was born weighing 1 lb 8 oz. A tiny little peanut, but boy was he feisty. He still is! We love it now, but we probably won't when he is a teenager. I write about our journey and all other things that come with it, including a brain tumor. We look forward to "meeting" you - come hang out with us...we're pretty cool. View all posts by Andrea M