Catch Up With Jax (Past Posts)

Popular Posts

1. Dear Extended Family, Isolation Isn’t About You
2. Five Things to Say to a NICU Family
3. Pumping in the NICU: Liquid Gold or Liquid Guilt?
4. Sensory Diet Round-Up: Tools and Techniques That Work for My Sensory Seeker
5. Listen To Your Mother Performance: Afraid of Heights
6. When Birthdays Bring Fear: Birth Trauma and PTSD
7. Waiting for Lilacs (on Brain, Child Magazine)
8. Tuck, Not Stretch (Physical Therapy for Preemies)
9. Is One Child Enough? Thoughts on Pregnancy After a Micropreemie
10. How Having a Preemie Changed Me (10 Things I Learned About Myself and About Life)

All Posts

• Hi Neighbor! Introducing My Child with Autism to Neighbors
• A Guardian Angel Story: She Never Let Go
• My Son with Autism was Missing for 58 Minutes
• A Sensory Friendly Day Out with Thomas the Train
• We’ve Got a Runner (ASD and Elopement)
• All Is Right In Our World
• Oops! Sorry, Forgot an Update
• A Hospital Hangover Just In Time for Surgery
• Expect the Unexpected: Part 2
• Our Family Motto: Expect the Unexpected
• Special Needs Parenting: Someday I’ll Ditch the Self-Doubt
• The Year In Review (Onward)
• Mom’s Christmas Tradition
• Coming to Terms With an Autism Diagnosis
• Thankful on Thanksgiving
• A Good Day
• Uneventful Night – Hooray
• High Flow 
• Gobble, Gobble, Hospital
• Bringing Hope to NICU Families
• Meltdowns and Articles
• At the Apple Orchard
• My Birthday Wish
• Chicken Soup for the Soul and Hope for Preemies
• When Preemie Isolation Is Over: Five Tips for Transitioning to the Outside World
• The Birthday Boy
• Things About Four
• Listen To Your Mother Performance: Afraid of Heights
• Waiting for Lilacs
• Sensory Diet Round-Up: Tools and Techniques That Work for My Sensory Seeker
• Sensory Stuff
• Last Day of Preschool
• Home Again
• Still Here
• The Hospital: Our Second Home
• Listen To Your Mother Twin Cities
• Nothing Ever Goes As Planned, Sometimes That’s a Good Thing
• The Night Before the Ninth Surgery
• Have You Hugged A Doctor Today?
• Hip, Hip, Home!
• Deja Vu (Back at the Hospital Again)
• Waiting
• An Ode To Moms
• Sprucing Up Around Here
• Pneumonia Strikes Again
• Listen To Your Mother Show
• How Do I Help a Family in the NICU?
• Hope Surrounding Postpartum Anxiety and PTSD
• Are you an (Extra)ordinary Mom?
• The Running Man
• Published on Huffington Post? Check.
• When Birthdays Bring Fear: Birth Trauma and PTSD
• Gratitude
• First Visit with Santa
• Settling in at Home
• Six Days Later: Going Home
• Send Jax a Video
• Six Liters to High Flow: Cool Band Name or Worst Nightmare?
• The Hospital and Oxygen Support
• Another Surgery on the Horizon
• Day at the Developmental Pediatrician
• World Prematurity Day, Everyday
• Ditched One, Added Another
• Fall Time Fun
• October Anniversaries
• The Big Yellow School Bus
• The Floopy Mystery and Occupational Therapy
• School Germs and Preemie Lungs
• First Day of Preschool
• “On Saturday, He Eat Pwums”
• All Healed Up
• A Few Years at the Orchard
• The Amazing Shrinking Tumor
• Comfy at Home
• The Seventh Surgery and the Sixth Scan and It’s Still Not Easy
• Transitioning my Preemie from Early Intervention to Special Education Preschool
• The Day Jax Got His Name
• Dear Little Boy, On Your Birthday
• Birth Trauma and Post-Traumatic Stress Disorder (PTSD)
• The Sleep Monster
• The Month of July
• Five Things to Say to a NICU Family
• Special Education Preschool – A Bittersweet Realization
• Dear Daddy…
• Happy Little Haikus
• I Know What I’ve Been Forgetting: It’s OK to Take a Break
• Preemie Babies 101 Post: Preemies and Ear Tubes
• A Sickie Kid and the Emergency Room
• My Favorite Moments of Motherhood
• Just A Little Tune To Make You Smile…
• “Graduation” Day!
• Springtime Fun
• I Was A Lucky NICU Mom, But I Still Have PTSD {Guest Post}
• Nothing New at Neurology
• New to Neurology: A Referral to Another Specialist
• School Days and a Monkey Backpack
• Semantics Matter: We Won’t Call It Cancer
• Semantics Matter: When the Doctor Says Cancer
• The Other Shoe Did NOT Drop
• The Anxiety of Waiting for the Other Shoe to Drop
• What It Means to Have a Million-Dollar Baby
• I Can See Clearly Now: Retinopathy of Prematurity (Preemie Babies 101 Post)
• Oops – Here’s a Photo Consolation Prize
• Picture Comparison: Two ER Trips in Two Years Time
• An ER Visit, A Hospital Admission, and a Miraculous Turn of Luck
• Throw Back Thursday: Picture Comparison in Preparation for a Seminar
• Same-Same But Different
• “Hang It Up and See What Tomorrow Brings”
• Eyes and Opinions
• Fake It ‘Til You Make It
• We Didn’t Leave With a Smile, But I Guess It Could Be Worse – Results From the Brain MRI
• The Day Before An MRI: Scanxiety
• Dear Mom Waiting For a Diagnosis: Five Things to Remember – A Post on Preemie Babies 101
• The Flu and Your Favorite Five
• From Walking, to Jumping, to Climbing (A Picture Comparison)
• Frosting Fanatic and a Holiday Greeting
• Was James Really 22 Weeks 6 Days?
• At the Job-site: Picture Comparison
• When Your Child with Speech Delays Says I Love You
• Thankful for Rock and Roll (and Other Things)
• Hope During a Medical Crisis (Preemie Babies 101 Post)
• The Due Date Two Years Ago (Happy Adjusted Birthday!)
• A Drumming Prodigy? Well, Maybe
• Ask Us Anything In Honor of World Prematurity Day
• A Special Needs Family Connection and a Poem I Didn’t Write
• NICU Homecoming Annivesary
• Happy Friday
• Buttermilk Biscuits and Sausage Gravy Recipe
• Does My Child Have Special Needs?
• A North Shore Adventure
• A Surgery Super-Star and a STABLE Result
• Surgery Number Six and the Sun Is Shining
• How Raising a Micro Preemie is Like Running a Marathon (And I Hate Running)
• Learning to Parent a Micropreemie in the NICU (Preemie Babies 101 Post)
• Major Rager: Just Another Reason Chronic Lung Disease Sucks
• Coordinating Care for a Child with Extra Medical Needs: A Real Life Example
• A Lesson in Humility and Parenting: A Run-In at a Restaurant
• Juvenile Pilocytic Astrocytoma Brain Tumor and the Waiting Game
• A Big Week of Appointments: NICU Follow-Up and Neuro-Oncologist
• Jax’s 2nd Birthday Celebration
• T’was the Night Before Two (Years Old)
• Good News and Bad News: Results from the Brain MRI
• Taking It To the Limit: A Strange Skin Rash Just In Time for a Brain MRI
• A Stressful Schedule and Jax Starts Daycare
• Bracing for a Diagnosis (Ankle-Foot Orthotics (AFOs) and a Brain MRI)
• Outdoor Imagination Play at the Minnesota Landscape Arboretum
• Going Back to the Scene of a Trauma (Guest Post on Preemie Babies 101)
• A Boy Underwater (Swimming Lessons)
• A NICU Family and the Vermont Oxford Network (VON): Working Together to Improve the NICU Experience for Micropreemies and Families
• California Here I Come: Vermont Oxford Network (VON) NICU On-Site Collaboration
• Baby Steps 3K: Team Jaxson’s Journey
• A Boy on the Move: Vestibular Processing Disorder
• Digging in the Dirt: Tips for Building a Kid-Friendly Garden
• 10 Things I’ve Learned from My Spirited Boy (Happy Mother’s Day)
• Thank you NICU nurses!
• Are Mullets Cool? Jax Gets a Haircut
• A Fun Time Fishing Indoors
• A Time of Life and of Death: Springtime Anxiety and Awareness
• Sunshine and Smiles: Playing Outside in the Spring
• Braver than Batman (Parents of Preemies Day)
• Jax and Daddy Jam
• Boy Meets World (In the Springtime)
• When Are You Going to Get Over It? The Lasting Effects of Prematurity – My Messy Beautiful
• Dreaming of a Summer Day (Featured on BlogHer)
• What Would I Tell My High School Self About Prematurity?
• Is One Child Enough? Thoughts on Pregnancy After a Micropreemie
• A Little Luck O’ the Irish
• Guest Post Galore
• Does Jax Like Sledding? (Life Through the Eyes of a Child)
• A Busy Man (Jax Takes Phone Calls to Plan His Post-Isolation Social Schedule)
• How Spare Key Helped Our Family Bounce and Not Break (Financial Assistance During a NICU Stay)
• Wordless Wednesday: Brusha Brusha
• Jax Graduates From Physical Therapy
• Surviving Isolation: Guest Post and Outside Fun
• Like Mother or Like Father?
• A Daredevil In Training
• Awww Shucks: Liebster Award
• A Lung Update, Part II
• A Different Kind of Postpartum Follow-Up Care for NICU Moms
• Kids Can Cook: Homemade Soft Pretzels
• Photo Friday: The Working Man
• Knock, Knock – Housekeeping?
• We’ve Come a Long Way, Blog Baby
• A Glimpse Into Life with Chronic Lung Disease
• This Is What Happens When You Watch Too Much Walking Dead
• A Winter Get-Away to Chicago for People Who Like to Eat and Drink
• Good News Eye Appointment
• Dear Extended Family, Isolation Isn’t About You
• Nothing Left To Do But Eat: Sausage, Potato, Kale, and White Bean Soup
• Eye’m Not Going to Lie – It’s A Little Scary
• A New Year, A New Beginning
• Houston, We Have a Toddler
• Hope During the Holidays (Jax Takes His First Steps)
• NICU Follow-Up and a Little Drummer Boy
• Making Blueberry Sour Cream Bread In Jax’s Sensory Kitchen
• A Musical Genius – Jax Plays the Kazoo
• Eye See You (Without Glasses…For Now)
• Little Boy, Little Boy What Do You See?
• A Sanity-Saver for Germaphobes
• Place Your Bets, Folks – When Will Jax Walk?
• The Brothers P – Nicole’s Preemie Birth Story
• Fun with Family and Now, Isolation…
• Thankful for a Song and a Dance
• Tiny Twins – Stacy’s Story (Guest Post in Honor of Prematurity Awareness Month)
• The Would-Have-Been-Birthday
• The 14oz Fighter – Kari’s Preemie Birth Story
• Prematurity Feels Like…(World Prematurity Day)
• Super Fluffy Pancakes – A Quick and Easy Breakfast
• A Micropreemie Miracle – Michele’s Story (Guest Post in Honor of Prematurity Awareness Month)
• Mom’s Sweet and Sour Meatballs
• An Exciting Day in Blog-Land (Featured on BlogHer and Preemie Babies 101)
• How Something I’d Never Heard of Changed My Life (Prematurity Awareness Month)
• The Boy Who Bounces Back
• Jax the Punk Rocker Getting Ready Surgery Tomorrow
• And Then A Guardian Angel Sent Him Home (Jax’s NICU Homecoming Anniversary)
• Bath Time: Then and Now
• Vote For Your Favorite Preemie Superhero (That’s Jax!)
• Raising My Son Without My Mom (How Do I Do This?)
• Storing Up A Sunny Day
• A Referral to Another Doctor (For Increased Tone and Toe Walking)
• Gearing Up For RSV Season (7 Ways You Can Help)
• Beep, Beep Mommy! Outta My Way! (Jax Stands)
• Quick and Easy Chicken and Vegetable Coconut Curry
• Let’s See Those Baby Blues: Jax’s First Haircut
• Featured on BlogHer
• A Short Stay Superstar (Another Overnight Hospital Stay)
• Here We Go Again (Prepping for Surgery)
• A Punk Rocker With Lots of Ideas for Lock-Down Fun
• Planning Ahead for Lock-Down and a Big, Important Decision: What Should Jax Be for Halloween?
• Neonatal Nurses: Real Life Superheroes in Disguise
• Hi Friend, Do You Want a Hug? (Jax’s First Day at School)
• How Having a Preemie Changed Me (10 Things I’ve Learned About Myself and About Life)
• Why I Think Primary Nursing Is Important
• A Comfortable Day Deserves Comfort Food: White Chicken Chili
• A Weekend of Fun In Pictures
• Sunshine, Angels, and Love (Our Wedding Was Awesome…I’m Just Saying)
• Celebrating 100 Posts: Jax Style
• Picture Comparison: Mama’s Birthday
• Preemies Rocking Out (Music Therapy in the NICU)
• The Transfer (From St Cloud to St Paul)
• The Waiting Game and The Power of Positive Thinking
• The Call In the Middle of the Night
• Jax’s First Boat Ride
• A Mover and a Shaker
• A Preemie Paradise
• Pumping in the NICU: Liquid Gold or Liquid Guilt?
• If Jax Is Doing Great, Then Why Am I Falling Apart? (The Bittersweet First Birthday)
• Little Blue Lamb: Picture Comparison
• In the Rear View Mirror: Facing our Fears and Then Driving Away
• Happy Birthday, Jax! (The Year in Pictures)
• Congratulations, Graduate! (Jax Said Goodbye to 3 Doctors This Week!)
• Going Back to Where It All Began
• About a Year Ago…
• A Swallow Study, A Bronchioscopy, and Ear Tubes Oh My!
• A Social Baby Does Not Miss Lockdown (Socializing a Preemie with Chronic Lung Disease)
• Splashing Into Summer (The Pool!)
• Picture Comparison: Mohawks
• Notice of Celebration of Life for Jane Beahan
• Introducing Jax’s Newest Guardian Angel
• Breathe In, Breathe Out (A Lung Update)
• A Light at the End of the Tunnel (I Get a Vacation…)
• Wordless Wednesday ( This is What Happens When No One Gets Any Sleep)
• Jax Has Something to Say for Father’s Day
• You Have My Permission… (A Letter to Myself)
• A Breakthrough With Eating Textures
• A Slew of New Doctors
• Sunshine On Our Shoulders (Walking for a Good Cause)
• Daily Prompt Silver Linings: I can see clearly now…
• Are You Ready?! Baby Steps 3K Walk (NICU Reunion) Team Details
• Jax’s 10-Month Review
• Memorial Day (A Parade, an Honor, and a Visit)
• Jax Can Sit!
• And the Winner Is…
• A Helmet and a Game Plan (Cranio-Cap, Physical, and Occupational Therapy)
• On The Road to Recovery
• Jax’s First Emergency Room Visit
• Picture Comparison: Our Family Then and Now
• A Time to Say Thanks (St Cloud NICU Reunion)
• It Won’t Be Snowing on June 1 (Join Our Baby Steps 3K Team)
• Sunshine and Festivals
• Moms and Angels
• Bye Bye Oxygen (For Good!)
• A People Person (Jax’s First Roadtrip)
• Just Another Friday Update
• Raising the Helpers
• There Was Green Grass…
• Tuck, Not Stretch (Physical Therapy for Preemies)
• Jax is Kind of a Big Deal
• Our Turn to Give Back: Baby Steps 3K Walk to Benefit Children’s NICU
• A Weekend of Fun (Outside)
• Kangaroo Care in the NICU
• “Graduation” Day!
• Stevie Wonder and Retinopathy of Prematurity (ROP)
• Party Animal
• A Glimpse of Freedom (The End of Lock-Down is Near)
• Prepared to Come Out On the Other Side
• Then and Now: A Picture Comparison
• Date Night
• First Day Back at Work…Oh. Wait.
• 7 Months and Kicking
• Braver than Batman (Parents of Preemies Day)
• A Friday Update (Mmm…avocados!)
• A Stay-At-Home Mama
• Learning
• A NICU Mom Connection
• That’s What Jax Has To Say About That
• Medical Mumbo-Jumbo (FAQ about Jax’s Medical Issues)
• Life In The Second Half (Happy 6 Month Birthday, Jax!)
• A Rocket! (On the Growth Charts)
• What a Trooper
• A Scary Sleepover (Post-traumatic Stress and the NICU)
• Funny Face Friday
• Good News!
• A Hobbit Fantasy and A Cold
• Happy New Year!
• Go Vikings!
• Jax’s First Christmas
• A Medley of News
• Facing a Diagnosis and a Bruise
• Monday Morning…
• A Smile for Daddy
• A Christmas Tradition
• Never Let Go: A News Story
• A Winter Surprise
• No Alarms and A Comparison
• Living the Dream…Off Oxygen?
• Jax’s TV Debut
• Little Yowler
• Top Five Things I Love Most About Being a Mommy
• All That and a Big Turkey (Happy 4 Month Birthday, Jax!)
• Happy Due Date, Jaxson!
• A Family Four Months Early
• I can see clearly now…
• Thank you NICU nurses!
• 2 weeks in…