Bracing for a Diagnosis (Ankle-Foot Orthotics (AFOs) and a Brain MRI)

Today, guys, I was completely blindsided.

Jax is walking, running (FAST), climbing, jumping, and generally moving like a maniac. I haven’t seen any toe-walking in about a month. Jax graduated from outside physical therapy six months ago. (He still sees a physical therapist once a month through Early Intervention.) I had put the possibility of ankle-foot orthotics and Cerebral Palsy out of my mind.

So, today when I walked in the PM&R (physical medicine and rehabilitation) follow-up appointment, I was thinking the doctor would tell us everything looked great and that we never had to see her again.

But, actually, the exact opposite happened…

Today, Jax got an X-ray of his hips and legs and then got fitted for AFOs, or ankle-foot orthotics.

The doctor also ordered a sedated brain MRI to check for brain injury that could be causing the problems in his leg.


I’m still trying to wrap my head around this. I know that even if Jax is diagnosed with Cerebral Palsy, it is a very mild case and it will not impair him much in the long run. However, I think this is a perfect example of the other shoe dropping… and even though I’ve been waiting for something like this to happen (because all the statistics said it would), it still doesn’t make it any easier to accept.

We pick up his AFOs in 2 weeks and the MRI will be scheduled within the next few weeks. We will have more answers then.

I don’t have any deep thoughts or helpful information right now. All I have are questions and fear. I was not expecting any of this today and it’s a lot to process.

I’m going to throw out a prayer point today, which is something I haven’t had to do in a long time. Please send some positive thoughts that the MRI shows no brain injury and that we can check this off our list of preemie-related scares.

Getting fitted for AFOs
Jax wasn’t too sure about getting fitted for his AFOs today. But Mr. Bill gave him some snacks, so he thought that was ok.